Magpie Concept

Overcoming Obstacles: Access to Medication for Rare Disease Patients in the Middle East

Access to medication for rare disease patients in the Middle East is a complex issue that requires attention from various stakeholders, including healthcare providers, policymakers, and pharmaceutical companies. Rare diseases affect a small percentage of the population, and the lack of awareness and information about these diseases in the region can lead to significant challenges …

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Rare disease & the dilemma of access in MENA

Rare diseases are a broad group of conditions that affect a small number of people. Most patients have no treatment or management options available for their condition. As awareness and understanding of rare diseases are often low, many patients struggle to find adequate information about their condition. They may feel isolated, overwhelmed, and unsupported. This …

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‘My Name is’ a new campaign to raise awareness of rare diseases by Magpie Concept

Every year we celebrate the ‘Rare Disease International Day’ on the last day of February. More than 300 million people are suffering from different types of rare diseases. There are between 5000 and 8000 rare diseases, most of them with a genetic basis. Despite the huge efforts that are done every year to this day, …

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