Rare Disease

Rare disease & the dilemma of access in MENA

Market Access, Rare Disease / By

Rare diseases are a broad group of conditions that affect a small number of people. Most patients have no treatment or management options available for their condition. As awareness and understanding of rare diseases are often low, many patients struggle to find adequate information about their condition. They may feel isolated, overwhelmed, and unsupported. This …

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‘My Name is’ a new campaign to raise awareness of rare diseases by Magpie Concept

Rare Disease / By

Every year we celebrate the ‘Rare Disease International Day’ on the last day of February. More than 300 million people are suffering from different types of rare diseases. There are between 5000 and 8000 rare diseases, most of them with a genetic basis. Despite the huge efforts that are done every year to this day, …

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